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Father hopes his 35-year battle for justice over death of son will finally be vindicated

By Mark Mansfield
Robert Powell with his father William

Martin Shipton

A father who has campaigned relentlessly for justice since his 10 year-old son died as a result of medical negligence 35 years ago hopes a meeting with Welsh Secretary Jo Stevens will lead to a positive outcome at last.

Will Powell’s son Robbie died of Addison’s disease, a rare illness that stops the adrenal glands pumping vital hormones. Doctors did not act on a suspicion that he had the condition and he did not receive the treatment that would have saved his life.

Six years later the NHS accepted that negligence had occurred at Morriston Hospital, Swansea.

An initial police inquiry said there was no evidence to justify criminal proceedings against doctors they coincidentally employed as police surgeons, but, after pressure from Robbie’s father Will Powell, a reinvestigation of the case by a senior detective from West Midlands Police resulted in a recommendation that 35 possible charges should be brought against five named doctors and a secretary.

Evidence had emerged of documents being tampered with, and a secretary confirmed during the inquiry that she had been asked to type a backdated medical referral note which gave a falsely positive impression of the care Robbie received.

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Evidence

In 2003 the Crown Prosecution Service (CPS) agreed there was evidence that various doctors had been negligent or grossly negligent and/or involved in forgery and perversion of the course of justice. Yet it concluded that none of them should be prosecuted because too much time had elapsed and that the police had effectively given them immunity from prosecution.

In late 2024 Mr Powell received an apology from the head of the CPS for the historic mishandling of the case. But he is still campaigning for a public inquiry into what he sees as a long-running cover-up, and the imposition of an individual “duty of candour” to everyone working in the public sector, including the NHS.

A public inquiry into the 1989 Hillsborough Stadium tragedy, in which 97 people died because of inadequate policing, found there had been a cover-up which resulted in fans being unjustly accused of responsibility for the deaths. Subsequently a duty of candour was introduced, under which there is an ethical and legal requirement for public authorities and officials to act in the public interest “with openness, honesty, and transparency about their actions, decisions, and failings”. An intentional or careless failure to discharge these duties, including misleading the public or media, would result in criminal sanctions.

Duty of candour

However, while the duty of candour applies to organisations, it does not apply to individuals.

During his meeting with Ms Stevens, Mr Powell was invited by her to brief a group of legal experts about the implications of extending the duty of candour to individuals.

Until the case of Robbie Powell the existence, or otherwise, of a legal duty of candour for healthcare professionals had not been raised or tested in the UK civil courts.

The statutory payment for Robbie’s death in 1990 was £3,500 if the parents could establish negligence and causation, and approximately £1,500 for funeral costs.

However, the Powells’ claim was estimated to be worth more than £300,000 because of the psychiatric damage caused by the events leading to Robbie’s negligent death, witnessing the death and the post-death cover up.

This included loss of earnings by Robbie’s father, who didn’t work for almost a quarter of a century, as a consequence of Robbie’s death, the cover up and a diagnosis of PTSD. Robbie’s mother was also on medication for more than two decades.

Had it not been for the Powells refusing to accept a six figure out of court settlement in 1996 and pursuing Robbie’s case through the UK and European courts, the absence of a legal duty of candour is unlikely to have been publicly exposed by any other medical negligence case. At the time the Powells had remortgaged their home and were on benefits.

The law, as it stood in 2000, was clearly set out by the European Court of Human Rights (ECHR) when it found Robbie’s case inadmissible and ruled there had been no breaches of the child’s human rights.

Duty

The ECHR stated that “whilst it is arguable that doctors had a duty not to falsify medical records under the common law … there was no binding decision of the courts as to the existence of such a duty.

“As the law stands now, however, doctors have no duty to give parents of a child who died as a result of their negligence a truthful account of the circumstances of the death, nor even to refrain from deliberately falsifying records.”

As a consequence of refusing the initial offer to settle the case, in 1996, the Powells ended up with no compensation and an order for costs against them.

Mr Powell said: “Ms Stevens was sympathetic to our case and as someone who was a solicitor before becoming an MP understood what we have gone through. But she thinks it would be difficult to hold a public inquiry because of the split in responsibilities between the UK Government and the Welsh Government. I don’t see that as a problem which couldn’t be overcome.

“Nevertheless she has invited me to meet a group of experts to explain the need to have an individual duty of candour. I’m happy to do that and hope Robbie's Law can be introduced so that doctors and nurses could in future be held responsible as individuals if they failed to tell the truth when something went wrong.”

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10 comments

Evan Aled Bayton

As a retired doctor I find it difficult to believe that falsification of records is not a criminal offence. I suppose it may not have been at that time. I think this should be run past the GMC in relation to falsification of records as well as lack of competence of the practitioners and possible cover up of events.

Reply
Will Powell

Thank you for your comments. It was accepted by the Crown Prosecution Service in 2003 that there was sufficient evidence to prosecute 2 GPs for forgery and perverting the course of justice.However, they evaded prosecution because of the passage of time, which was caused by a decade of cover ups by the Coroner, NHS, Welsh Office, Dyfed Powys Police and the CPS and also a letter of immunity that was provided to the GPs by Dyfed Powys Police, on the instructions of the CPS, in 1996, following an inadequate criminal investigation that was labelled by Avon & Somerset Constabulary in 2002 as being 'Institutionally Incompetent'. As a matter of interest the GPs were retained by Dyfed Powys Police as police surgeons. As for the GMC they sat on my serious complaints for 5 years and then engaged the 5 year time limit even though they had told me in writing that there was no time limit.

Reply
Will Powell

Sorry, please note it was 2003 that Dyfed Powys Police were labelled Institutionally incompetent by Avon and Somerset Constabulary!

Reply

In reply to Will Powell

Will Powell

Page 2 Re: Dyfed Powys Police being found Institutionally Incompetent in 2003!

Reply
Valley Girl

One of the doctor’s involved wife committed suicide a few years later.

Reply
Will Powell

That is true and very tragic. Do you think that the suicide was related to Robbie's case?

Reply
Rhys

I find the whole alleged coverup disturbing enough, but speaking as the husband of a woman who was diagnosed with Addison's in 2004, I think it also reveals that the medical profession at the time appears largely ignorant of the condition. My wife underwent numerous blood tests and was given umpteen referrals to a range of health professionals, but noone appeared able to diagnose her illness. Her weight had plummeted to under 7 stone and every day I saw her becoming more frail and breathless. I was literally losing her in front of me and there appeared to be nothing that anyone could do for her. Finally, her blood stats were so alarming she was admitted to Prince Phillip hospital, Llanelli for more tests. They conducted further and numerous tests until a relatively junior doctor looked at the palour of the skin on her hands and stated 'Check for Addison's!' He saved her life. I dearly wish that someone with his insight had been involved in the care of this little boy. My heart goes out to his family in their loss and for everything they've had to endure since then.

Reply
Will Powell

Thank you for your comments Rhys and passing on your condolences. I am pleased your wife was eventually diagnosed with Addison's disease [AD]. The problem with AD is that it presents vague symptoms and it's not until pigmentation of the skin is noted and/or abnormal electrolytes i.e. low sodium and high potassium, in particular, that AD is suspected.To this day the medical profession is still ignorant of this disease. In Robbie's case he almost died 4 months earlier when he was admitted to hospital, as an emergency, suffering from an Addisonian crisis. By this time, as well as having skin pigmentation, the child had lost a third of his body weight, was vomiting and had abdominal pain. His potassium was 6.0 and his sodium 122, which according to a Professor of Endocrinology appointed by the police was absolutely characteristic of AD. AD was therefore suspected by the hospital paediatrician and the ACTH test requested. Unfortunately, my wife and I were not told of the suspicion or the need for the test when Robbie was discharged and still very weak.However, our GPs were put on notice of AD, in writing, and the need for the ACTH test and also to admit Robbie immediately back to hospital if he became unwell. We were unaware of this prior to Robbie's death. The ACTH test was never done. Four months after the suspicion of AD Robbie was seen by 5 GPs on 7 separate occasions in the last 15 days of his life. On the GPs first visit on the day of death she refused hospital admission and on her second visit refused an ambulance notwithstanding Robbie was close to death. Robbie took his last conscious breath as we arrived at the hospital, by car, and was declared dead shortly after. RIP Robbie xx

Reply
Rhys

I'm so, so sorry to hear the full details of what occurred. I have no words! I only wish it could be described as an awful tragedy, but to realise that there were significant points where intervention could have saved your son's life and that action wasn't taken is sickening. Once again our hearts go out to you and your family. May I say that he was a very lucky little boy to have such loving, steadfast parents who still pursue his fight for justice.

Reply

In reply to Rhys

Will Powell

Thank you Rhys. Kind regards. Will

Reply

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Page 2 Re: Dyfed Powys Police being found Institutionally Incompetent in 2003!

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